Sunday, March 16, 2014

The Power of a Goal, father-son story nonpareil


MINNEAPOLIS -- After 50-year-old Steve McKee was diagnosed with an incurable form of cancer last year, his oldest son Mitch took it upon himself to try to make the disease disappear -- if only for a moment.



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Mitch McKee
CBS News
"Kind of flush it all away and kind of have him forget about it for that moment, and have everybody forget about it for that moment -- just be happy," Mitch said.
 It was a plan only a 15-old boy could dream up. Knowing how proud dads can be when their sons do well in sports, Mitch, a wrestler, decided he would try to win the Minnesota state high school wrestling championship for his dad, even though Mitch was only a freshman at the time.

"He might not be here next year, so I knew that this was the year to do it," Mitch said.

This colossally ambitious undertaking began in weight room. All summer, Mitch got up every morning at 6:00 a.m. to lift. And he practiced -- even when there wasn't practice, he practiced. As a result, Mitch won his first match of the season -- and his second.



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Steve McKee
CBS News
In fact, the kid won so many matches, he not only qualified for the state tournament, he made it to the finals. And this was it. All he needed to do was win this one last match, and he'd be the state champion in his weight class. All he needed to do was pin this one last opponent, and that cancer -- for one moment -- would disappear.

After the match, even the losing wrestler did a winning thing. He congratulated Mitch's dad, told him to stay strong. While Mitch, on the other hand, had far fewer words. He held his dad. Just held him.



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Mitch hugs his dad after the match.
Vanessa Schlueter
"For him to do it, for me, it was very emotional," Steve McKee said. "All the emotions you could ever have were right there."
 Asked if he forgot he was sick, Steve quipped, "Was I?"

"Yeah, life was definitely perfect at that moment, you know?" Mitch said. "I just wanted to stay right there forever."

Mitch McKee definitely did right by his dad. But he had one thing all wrong. He thought he needed a huge victory to make his dad feel better, when all he really needed was the love behind it.
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Netflix Pick: The Ben Carson Story: Gifted Hands

We watched this film some time ago. Quite a comeback story. Now there is a move afoot to draft Dr. Carson to run for president.

Tuesday, February 18, 2014

The comeback story behind "Ally's Law"

Another inspiring piece from Imagine, U Chicago publication:

Patient advocate, spokesperson, fundraiser and law student, Ally Bain has not let inflammatory bowel disease (IBD) stand in her way.

A well-known figure in the IBD community since her early teens, Bain was instrumental in drafting Ally's Law, which mandates restroom access for medical emergencies. The legislation first passed in Illinois and is currently in effect in 15 states. During college, Bain expanded her advocacy work, spreading awareness and raising funds for the Crohn's and Colitis Foundation of America. Now in her first year of law school, she plans to pursue a legal area that includes a public interest component.

"Her resilience in the face of her disease - and what she has accomplished - are an inspiration to her physicians and to many patients," said David T Rubin, co-director of the Inflammatory Bowel Disease Center. Rubin began treating Bain for Crohn's disease in 2005 when she was 15, shy and afraid of doctors. Today, he regularly invites her to speak to patients about IBD, and the two often work together to educate the public and government officials.

NOTHING LESS THAN REMISSION

Bain still remembers what Rubin promised her the first time they met: "You will be in remission within six months." She responded well to infliximab, a biologic therapy that targets an inflammatory protein in the body. Over the past decade, the regular infusion therapy has kept Bain's disease in remission. She continues to see Rubin every four to six months for monitoring.

"I tell my patients to expect nothing less than remission," Rubin said. "And if they are not there, we will keep working on it. We want all of our patients to have the stability and good health Ally has achieved."

Rubin encourages patients to stay informed about IBD and the advances in treatment and research. "The more patients know, the less out of control they feel," he said. Rubin and his colleagues share the latest information about the rapidly changing field through regular community education events and social media.

At the University of Chicago Medicine, patients can expect individualized care for Crohn's and ulcerative colitis as well as access to the latest clinical trials.  On the horizon: a gut-specific biological therapy that targets receptors only in the bowel, reducing side effects.

In addition. to offering innovative therapies and leading-edge technology, the IBD Center ties clinical work to basic and translational research. Studies focus on identifying the causes and understanding the mechanisms behind IBD, the function of the microbiome in digestive diseases, and the role of environment and diet.

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Facts from U Chicago Medical:

Inflammatory bowel disease (IBD) refers to a group of chronic diseases of the gastrointestinal tract,
including:

ULCERATIVE COLITIS
inflammation of the inner lining of the large intestine (colon) and rectum

CROHN'S DISEASE
inflammation deeper into the wall of the small intestine; it may also affect other parts of the digestive system

2001
The first gene associated with IBD was discovered at the University of Chicago.

TODAY
190 genetic variations are known.

The University of Chicago Medicine has about 20 active clinical trials for IBD.